February 10, 2016

PHOTO: North Haven Boy Celebrates “SMARD Awareness Day” in Recognition of his Rare Disease

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Pictured left to right: Lieutenant Governor Nancy Wyman, Sharon Agli-Pageau, Hunter Pageau, Senator Len Fasano, Representative Dave Yaccarino display a proclamation from Governor Dannel P. Malloy and a citation from North Haven lawmakers Sen. Looney, Sen. Fasano and Rep. Yaccarino recognizing the first annual event.

Hartford – The first annual Connecticut SMARD Awareness Day took place on Wednesday February 10. The special day was created to raise awareness for spinal muscular atrophy with respiratory distress (SMARD), an extremely rare disease. Hunter Pageau, a 10-year-old from North Haven who has SMARD, worked with state lawmakers last year to pass legislation establishing SMARD Awareness Day. By raising awareness, lawmakers hope to support research and treatment for the rare disease.

More photos from Hunter’s visit to the Capitol available on Flickr: https://www.flickr.com/photos/srophotos/sets/72157664368540871/with/24310563964/

To learn more about Hunter visit his Facebook page: https://www.facebook.com/HOPEforHunterPageau/

Statement from State Rep. Dave Yaccarino on PURA Chair Reappointment

“Governor Lamont’s reappointment of Marissa Gillett as PURA Chair is a mistake. Connecticut families are struggling with high electric costs, and they deserve leadership that delivers results and tells the truth. During her reconfirmation hearing, I asked Chair Gillett directly about the deleted text messages tied to an ongoing legal matter. I didn’t get a […]

July 1, 2025

Representative Dave Yaccarino Helps Pass New Law to Support Families of Fallen First Responders

HARTFORD – State Representative Dave Yaccarino (R-87) is proud to announce the passage of a new bipartisan law that provides critical support to the families of Connecticut’s first responders who lose their lives in the line of duty. Representative Yaccarino co-sponsored Senate Bill 1239, which renames the Fallen Officer Fund to the Fallen Officer and […]

June 27, 2025