Connecticut House GOP

    State Representative

    Dave Yaccarino
    AboutContactNewsroomDistrict MapLegislation
    Connecticut House GOP

    State Representative

    Dave Yaccarino
    Connecticut House Republicans

    Fighting for Connecticut's families and businesses with common-sense solutions.

    FacebookXInstagramYouTube

    Caucus Resources

    • Leadership Team
    • Caucus Members
    • House Republicans
    • Caucus Newsroom
    • Media Inquiries

    Legislative Resources

    • Bill & Document Search
    • Bill Information Search
    • Legislative Committees

    Documents & Surveys

    • OLR Major Public Acts 2023

    Government

    • Departments & Agencies
    • Governor's Office
    • State Budget
    • State Checkbook

    Contact Us

    Legislative Office Building, Room 4200
    300 Capitol Avenue
    Hartford, CT 06106

    860-240-8700
    800-842-1423

    Contact page

    Citizen Guide

    • 2021 Redistricting Project
    • About Connecticut
    • How to Testify
    July 23, 2015

    North Haven Boy Inspires Legislation on Rare Disease Awareness, Bill Signed into Law with State Lawmakers & Governor

    North Haven Boy Inspires Legislation on Rare Disease Awareness, Bill Signed into Law with State Lawmakers & Governor
    This article was archived from the previous WordPress site. Formatting and media should be close, but may not match the original post perfectly.

    Senate Minority Leader Len Fasano and Representative Dave Yaccarino’s proposal to recognize and bring awareness to spinal muscular atrophy with respiratory distress (SMARD) was signed into law at a ceremony held by Governor Dannel P. Malloy this week. The proposal, which Yaccarino and Fasano cosponsored, House Bill No. 6100, designates every 10th of February as SMARD Awareness Day. The legislation was inspired by Hunter Pageau, a North Haven boy entering 5th grade this fall. Hunter has SMARD, an extremely rare life-threatening motor neuron disorder. Only 10 people in the United States have this disease, and only 80 worldwide. For the past decade, Hunter and his family has advocated for more awareness and research to help those who have SMARD and their families. This legislation is a major first step to help families impacted by SMARD find new support.

    19734960070_6a474abe55_o press

    To help Hunter, friends of the Pageau family have set up a fundraising website at: http://www.youcaring.com/medical-fundraiser/help-hunter-pageau-outsmart-smard-a-cure-now-within-reach-/314436 and http://www.gofundme.com/SaveHuntersWheels.

    To follow Hunter’s story, visit his Facebook community page: https://www.facebook.com/HOPEforHunterPageau.

     

    Latest Posts

    Statement from State Rep. Dave Yaccarino on PURA Chair Reappointment

    Statement from State Rep. Dave Yaccarino on PURA Chair Reappointment

    “Governor Lamont’s reappointment of Marissa Gillett as PURA Chair is a mistake. Connecticut families are struggling with high electric costs, and they deserve leadership that delivers results and tells the truth. During her reconfirmation hearing, I asked Chair Gillett directly about the deleted text messages tied to an ongoing legal matter. I didn’t get a […]

    July 1, 2025
    Representative Dave Yaccarino Helps Pass New Law to Support Families of Fallen First Responders

    Representative Dave Yaccarino Helps Pass New Law to Support Families of Fallen First Responders

    HARTFORD – State Representative Dave Yaccarino (R-87) is proud to announce the passage of a new bipartisan law that provides critical support to the families of Connecticut’s first responders who lose their lives in the line of duty. Representative Yaccarino co-sponsored Senate Bill 1239, which renames the Fallen Officer Fund to the Fallen Officer and […]

    June 27, 2025