Posted on April 8, 2019 by admin
HARTFORD – State Representative Mike France (R-42) attended his third Epilepsy Advocacy Day at the Capitol earlier this week to hear from individuals living with the condition, and their families, about the challenges they face and how state government can help.
Advocacy Day participants came from all over the state on Tuesday to meet with one another in Hartford and share stories about their connection to Epilepsy. They also engaged in a thorough training session about 2019 legislative priorities and how to effectively engage with their legislators. They urged legislators to support policies that ensure timely access to Epilepsy medications and specialists, and end all forms of discrimination for individuals with Epilepsy. They particularly advocated for the passage of the following bills proposed this session:
- House Bill (H.B.) 7092, which expands eligibility for the Katie Beckett Waiver Program. This program allows the Connecticut Department of Social Services to provide home and community-based Medicaid services to individuals who have a physical disability, and may or may not have a co-occurring developmental disability, and would normally not qualify financially for Medicaid due to family income.
- B. 7093, which establishes a task force to study and develop recommendations to increase employment opportunities for persons with disabilities.
- B. 7166, which establishes a statutory right to timely and appropriate non-emergency medical transportation for Medicaid beneficiaries and provides a more timely avenue for such beneficiaries to appeal coverage lapses.
“I am happy to support the Epilepsy Foundation of Connecticut and the legislation they are advocating for,” said Rep. France. “Over the past several years that I have been in office, I have personally witnessed how epilepsy impacts my constituents and I want to continue to support programs that lead to improvements in their quality of life.”
“We always appreciate Rep. France being an Epilepsy champion up in Hartford,” said Mike Finley, Government Relations Representative for the Epilepsy Foundation of Connecticut. “I’m looking forward to continuing to work with him in the future.”
Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It is treated with daily medication, a specialized diet, surgery, nerve stimulation, and/or complementary therapy.
The Epilepsy Foundation of Connecticut is dedicated to improving the lives of people with Epilepsy and their families by helping them to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives. They are Connecticut’s only affiliate of the national Epilepsy Foundation. For more information, please visit www.epilepsyct.com.