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Rep. Yaccarino to Ring Bells for the Salvation Army

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North Haven State Representative Dave Yaccarino will participate in the Salvation Army’s Red Kettle Campaign by ringing bells at Stop & Shop on Tuesday, December 12 from 8:00 – 9:00 a.m.

Community members are invited to support the cause and donate whatever they can.

The Stop & Shop is located at 79 Washington Avenue in North Haven, CT.

WHO: Rep. Dave Yaccarino

WHAT: Salvation Army’s Red Kettle Campaign bell ringing

WHEN: Tuesday, December 12 from 8:00 a.m. – 9:00 a.m.

WHERE: Stop & Shop – 79 Washington Avenue in North Haven, CT.

WHY: State legislator will join fellow volunteers ringing bells to raise money for the Salvation Army this holiday season.

 

Rep. Yaccarino Earns 100 Percent Voting Record

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Hartford – Representative Dave Yaccarino (R-87) earned a 100 percent voting record for the 2017 legislative session according to recently release data from the House Clerk’s office. There were 417 votes cast during the 2017 regular session and special session. Rep. Yaccarino received a 100 perfect voting record for the seven years that he has served in the House of Representatives.

“I want the people of North Haven to know that I take my role as an elected official very seriously, so much so that I have received a perfect voting record during the 2017 legislative session,” said Representative Yaccarino. “It is an honor to represent the 87th District in the state Capitol and as always I am humbled by the opportunity.”

Representative Yaccarino currently serves as the top ranking House Republican on the Commerce Committee and is also a member of the Environment Committee and the Finance, Revenue and Bonding Committee.

The next regular legislative session will convene in February 2018. For an overview of important legislation addressed in the 2017 legislative session visit the Office of Legislative Research website: www.cga.ct.gov/olr/Documents/year/MA/2017MA-20170620_Major Acts for 2017.pdf.

Anyone with questions, ideas or concerns about state-related issues can contact Representative Yaccarino’s office at Dave.Yaccarino@housegop.ct.gov or 860-240-8700.

North Haven Residents, Legislators Talk Issues Over Coffee

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NORTH HAVEN – On Friday, December 1, State Rep. Dave Yaccarino (R-87) and State Sen. Len Fasano (R-34) met with North Haven residents at their monthly “Coffee with Your Legislators” event, which is held at McDonald’s on Washington Avenue in North Haven.

The legislators offered residents an update on legislative activity, answered their questions about state issues and listened to their concerns about the community.

“Having recently just concluded the 2017 legislative session there was much to discuss. Namely, residents were concerned with the Medicare Savings Program – and rightfully so. I am committed to working on behalf of seniors to resolve these issues. I am thankful that so many residents showed up,” Rep. Yaccarino said. “Ensuring that our constituents are informed and receive the latest news from the state Capitol is one of the most important responsibilities that an elected official has. I look forward to serving the people of North Haven during the 2018 legislative session which begins in February.”

‘Coffee with Your Legislators’ is held on the first Friday of every month from 8:00 – 9:00 a.m. at McDonald’s, located at 129 Washington Avenue, North Haven.

Anyone unable to attend but would like to speak with Rep. Yaccarino or Sen. Fasano can reach them by contacting David.Yaccarino@housegop.ct.gov or Len.Fasano@cga.ct.gov.

North Haven Resident Recognized for Establishing First Annual Day of Awareness in the Country for Rare Bone Disorder

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North Haven – North Haven resident Holly LaPrade was recently recognized for her efforts to establish the first annual day of awareness in recognition of Fibrodysplasia Ossificans Progressiva (FOP) which took place on Sunday, November 26, 2017. LaPrade, who has FOP,  was presented with citations from the Connecticut General Assembly and the Town of North Haven celebrating her work to make Connecticut the first state in the country to establish an FOP Awareness Day to bring attention to the ultra-rare genetic bone condition.

In 2016, LaPrade began the process of sharing her story with lawmakers at the State Capitol. This summer, the day of awareness was made official with the passage and signage of Public Act 17-204.

FOP affects only two people in the state of Connecticut: Holly LaPrade of North Haven and Jasmin Floyd, who resides in Danielson. Although FOP is extremely rare, the discovery of a cure could lead to better understanding and treatment of more common conditions that affect millions of people worldwide including osteoporosis, fractures, hip replacement, heterotopic ossification that occurs in trauma and burn victims and other bone-related disorders.

By raising awareness, the hope is also for more physicians to be trained in recognizing the symptoms to avoid misdiagnosis which have caused a great deal of pain and suffering for patients and families worldwide. Bringing attention to the disorder is also an important step in developing new treatments and searching for a cure.

Pictured from left to right:  FOP Advocate Gary Whyte, Senator Len Fasano, Representative Dave Yaccarino, Holly LaPrade’s brother and mother, Holly LaPrade and her husband holding two citations, Holly LaPrade’s father, and First Selectman Mike Freda.

Learn more: www.ifopa.org.

North Haven Woman Helps Connecticut Become the First State to Declare Awareness Day for Rare Bone Condition

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North Haven – November 26, 2017 will mark the first annual day of awareness held in Connecticut in recognition of Fibrodysplasia Ossificans Progressiva. FOP is an ultra-rare genetic bone condition that affects only two people in the state of Connecticut: Holly LaPrade of North Haven and Jasmin Floyd, who resides in Danielson.

Senate Republican President Pro Tempore Len Fasano and State Representative Dave Yaccarino, both of North Haven, today applauded LaPrade of North Haven for her efforts advocating for the day of awareness. Her advocacy resulted in the Connecticut General Assembly passing legislation to designate every November 26th as Fibrodysplasia Ossificans Progressiva Awareness Day to raise public awareness for the rare connective tissue disease.

“Holly LaPrade is an inspiration,” said Sen. Fasano who cosponsored the legislation. “Alongside FOP Advocate Gary Whyte, Holly has been an unwavering force advocating for awareness. Holly knows that spreading knowledge is about more than her own struggle, it is about helping all those who suffer from this disease worldwide. Raising awareness is the first step to finding new treatments, better understanding the condition, and ultimately finding a cure. Here in Connecticut we have some of the greatest medical researchers and doctors in the world. We need to make sure these professionals know about the disorder, what to look for in diagnosing patients and can apply their knowledge to look at new treatments.”

Although FOP is extremely rare; the discovery of a cure could lead to better understanding and treatment of more common conditions that affect millions of people worldwide including osteoporosis, fractures, hip replacement, heterotopic ossification that occurs in trauma and burn victims and other bone-related disorders. 

“I want to thank both Holly and Jasmin for sharing their stories and their experiences with all lawmakers at the Capitol. Their bravery in confronting this condition and not being afraid to share their experiences is what propelled this legislation forward,” said Rep. Yaccarino.

In 2016, LaPrade, began the process of sharing her story with lawmakers at the state Capitol. This summer, the day of awareness was made official with the passage and signage of Public Act 17-204.

The primary goal of initiating a day of awareness for FOP is to call much-needed attention to one of the rarest diseases in the world. Few doctors encounter it in medical school. As a result, misdiagnosis has caused a great deal of pain and suffering for patients and families worldwide. By better educating physicians and healthcare workers, advocates hope that dangerous misdiagnoses will not occur in the future.

FOP is one of the rarest, most disabling genetic conditions known to medicine and causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.