Rep. Camillo (R-Greenwich), whose sister, Donna Marie Camillo, passed away at the age of eleven from a rare form of leukemia, spoke of the need to raise awareness and direct more funds towards research. The event, Rare Disease Day, which was held on February 28, 2018 at the Legislative Office Building in Hartford, included multiple speakers including legislators and residents from across the state. They spoke from their own experiences with a rare disease, and called for more action.
When Donna passed away fifty years ago, there was no cure or effective treatment. Today, the survival rate for the disease is ninety percent. Thanks to advancements in medicine and increased awareness across the nation, the survival rates for many of these diseases have declined, and will continue to do so. Rep. Camillo has pledged to support legislation in Hartford to assist affected families and research efforts.